Fourth Edition of the Electronic Medical Record for Facial Anomalies – Ten Years of Experience

Abstract

Changes in outcomes during growth and subsequent treatment require not only a multidisciplinary approach but also a system enabling the follow-up of the patients. We present our ten years of experience with an innovative web-based platform that follows around 1500 patients born with facial anomalies on a national level. The degree of the full follow-up can be measured by the number of patients that drop out and the number of patients that have global assessment scores at a fixed period of age. At our actual level of integration of the filters, reminders, and statistics the level of coverage of the outcomes is between 18 to 39% based on the global assessment scores in different periods of age. Even if we had organized several pieces of training for parents in the last three years it is evident that we should improve in future the clarity of our messages in leaflets, training, and websites.